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19 Responses to Contact

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  1. V says:

    Hi Leigh,

    I am a suspected Aspie and am considering (read: “encouraged” to get) a formal diagnosis. Before I do that, I’d like to know a few things and I wondered if you could help.

    1 – Should I get a diagnosis, will this diagnosis be confidential or will it be accessible to other people ? Will it be confined to England or is there any chance that this could end up somewhere in a file in another country ?
    2 – Should I get a diagnosis, am I then obligated to tell that to any future prospective employer when I apply for a job ?
    3 – Should I get a diagnosis, how many doors will that close for me that you are aware of ? I know the military is one, can you confirm that ? Is there any other ?

    The reason for those questions are that I read the military will systematically reject any applications from people diagnosed with Asperger. So should I in the future wish to join the military or apply for a job there, if I have a Asperger diagnosis and the obligation to tell them or, if they have access to my medical file, then they’ll reject me. I wonder if that is true and I would like to know if I can expect any other such consequences to getting formally diagnosed. Also, if I get a diagnosis and it turns out “badly” for me in my current job, will I then have the possibility to start afresh, in another job in England, or in another country, and still have the possibility to hide and not tell anyone I am autistic ?

    I need to know that kind of information before I go ahead. Any help would be appreciated. I asked the same question at a diagnosis practice and at the National Autistic society but they are overwhelmed at present and not answering anything.

    Thanks in advance.

    • Leigh Forbes says:

      Hi V,
      1. My understanding is that your medical records are still strictly confidential in the UK, and can only be accessed by people/organisations you have given your permission to. I’m not aware that medical records are shared with other countries, so, no, I don’t think there is any official way knowledge of your diagnosis could turn up in another country.

      2. You are not obliged to tell ANYONE about a diagnosis, not your friends, family, current employer or future employer. If you were to tell an employer (current or future), and you were refused a job or sacked on the basis of your autism, that would come under disability discrimination, which is illegal in the UK. Some employers might try to find ways round the law, by sacking you, or refusing you a job on other grounds, but they would have to be able to prove that your autism had nothing to do with their decision. But who would want to work for such an unscrupulous employer anyway! Many employers will be happy to make the necessary accommodations for autistic employees, and some are even particularly happy to employ autistic people, because we’re seen as an easy way to tick the “equal opportunities” box. So, there are pros and cons to telling an employer, but the law is on your side.

      3. I heard some years ago that UK police forces don’t employ autistic people, at least not as serving officers (there are plenty of other, civilian, roles within the police); but I don’t know if that’s still the case. I don’t know of any other restrictions. However, I would imagine that the military could reasonably expect access to your medical records, so I doubt a diagnosis is something you could, or should, hide from them.

      All that said, autistic people have unique talents, and are particularly suited to – and can excel at (and thus particularly enjoy) – certain kinds of work. I strongly recommend reading Tony Attwood’s “Complete Guide to Asperger’s Syndrome” in which he dedicates a chapter to work-related strengths, weaknesses, and career choices for those with autism.

      Good luck!

  2. Jessica says:

    I am a 34 yr female and I have just in the past week been diagnosed…I have to say the diagnosis and finding this site has been the biggest sigh of relief I have ever had.
    Thank you for being here

  3. Dana says:

    Reading through this website (and others) has led me to being tested. When I read through personal accounts of women who didn’t find out they were on the Autism spectrum until their 20s, 30s, and later, everything made so much sense. Something clicked and simply reading about their struggles and relating to them made me hate myself slightly less. I took every Autism test I could find online and each one had positive results. I found a great doctor and testing begins next month. But now I wonder, what happens if I’m not on the spectrum? I’ve spent all this time believing I could have ASD and all this energy studying and reading about Autism and Asperger’s. What if I’m not? What if they tell me no and I’m back to where I started? Depressed, anxious, awkward, and alone. What do I do?

  4. Sahara says:

    Have had painful experience of GP stating im probably not asperger. Because im married and have friends,even after i gave a list of my traits and back up of my husband. I broke down shaking and crying uncontollable in the surgery since i keep getting diagnosed with depression. Doesnt explain my over sensory overload, how to interact in conversations and ..i could go on.. I now feel awful

  5. Jane says:

    Hi
    I have just come across your website now, and will go through it a few more times to take in all the info. My son was diagnosed with Aspergers at 4 years old and through his own hard work and help he is doing really well. He is now almost 18 and will in a couple of years go to university.
    I have also set up an Autism discussion group where I work, with 33 members, and we organise events to bring more awareness about Autism, including a convention on 8th April for 30 local students on the Spectrum.
    As I understand more about Aspergers I am becoming more convinced I have it, and am thinking about getting a diagnosis. Once I have read through all the information I’d like to be able to ask questions to someone if that’s possible?
    Thanks
    Jane

  6. mark kent says:

    do you have any other research too take part in

    mark

  7. Liz says:

    I have read all this and am now in tears, ruining the make-up that makes me look like I’m supposed to. But I’m 62 next month – is there any point getting a diagnosis now?

  8. Lisa says:

    Leigh, My hours have been cut at work so I’ve decided to move to where the job prospects are better and where I’ve been going on holiday for donkeys years. Altho I WANT to move there I’m still finding the whole business very stressful , particularly as at 56 I’ll be leaving the home where I’ve lived all my life. The uncertainty of the situation and the excitement are making it difficult for me to sleep and I’m getting very agitated too.

    Can you offer any help on how to cope with the situation? I’m only self diagnosed, by the way but about a month ago I finally got my doctor to agree to refer me for a formal diagnosis, and that’s unsettling me too.

    Regards

    Lisa Blosfelds

  9. aaryn says:

    I really enjoyed reading some of your articles and I love the line “I am not a failed person, I am a successful aspie”. I would like to invite you to look at my youtube channel in which I, an adult with aspergers find ways to handle situations that many like me have difficulty with. When you get some free time, I would like to hear your feedback so please leave a comment on the channel. Thank you and I look forward to working with you.

    Aaryn Smith

    https://www.youtube.com/channel/UCA_ASGiwh4VsZdBrQGXLiEg

  10. Kevin Mathews says:

    My GP has referred me to you for an assessment for Asperger’s. I have private health insurance and would like to arrange an appointment asap. Please call me on 07964 157765. Thank you.

  11. billie says:

    I would like to see information on children raised by a parent who has aspergers whether it was diagnosed or not.

    • Leigh Forbes says:

      We’re working on this. Look out for posts over the next few months.

  12. Hello Leigh,

    I have written a couple of spots on your website before as an Asperger sufferer myself. I have recently qualified as a hypnotherapist & I am properly qualified, accredited & registered with the Gemeral Hypnotherapy Register. I would like to offer my services to any of the people that visit your site at very preferential rates. I am not the only hypnotherapist offering this service. However, what makes me stand out from others is that I am Aspie myself. Which means that I can relate to how other sufferers feel in a non judgemental way. I’m a great believer in putting back into life what you take out of it as well.
    I am based near to Fareham in Hampshire. All my details are on the website including contact numbers. I appreciate that you might see this as cold calling, but my desire is to help the people & their families who visit your site. I hope that you would be willing to put this up onto your site or add the website as a link for others to find me,
    Best Wishes,

    Pete Sarginson.

  13. Catherine says:

    Wow. Thank you for this website! I’m a 45 year old woman and about a month ago I started watching a t.vv series that had an adult character with Asberger’s. Of all the characters on the show, and the 4 seasons of episodes that I watched – that was the character that I related to. I’ve taken the online Aspie tests and qualify with flying colors. The articles on this website, especially, “Think You Might Have Asperger’s Syndrome?” had me in tears… So perfect. Like the author was inside my brain. I’m tired of wondering why I am so capable and so behind everyone my age, in everything. Looks like I have the answer. I’m scared and excited because I feel like there’s freedom in the knowing now. I’m exhausted from wearing a mask for so long. Perhaps, I, too, can become a successful Aspie. Thank you. Thank you from the bottom to the top of my heart. Thank you.

  14. Lisa says:

    I’m not on Twitter or Facebook so would appreciate a direct email contact. I’d like some advice about how to cope with hospital. I’m having day surgery for carpal tunnel syndrome next month but am getting a bit concerned about how I’ll react. I nearly fainted a few years ago when I had a tooth pulled. I have such a strong sense of modesty that I even hang towels over the mirrors at home when I have a bath. The nurse has said that I will have to wear a gown and remove my bra due to the metal bits in it (I’m allowed to keep my knickers on) but am going to buy a metal free pull on bra so they will have no justification for insisting that I take it off. However, I can see that I might get a bit panicky and walk out if they do insist. Also I will have a nurse talking to me when I’m having the op and I’m not sure how I’ll feel making conversation with a stranger at such a stressful time, or if I’ll find it helps to keep my mind off things. There are no single rooms on the ward, by the way.

    Usually I avoid doctors like the plague as I don’t have much faith in them but my CTS is affecting my work and my hobbies so it really needs doing.

    Any comments or suggestions on how to cope would be welcome.

    Lisa

  15. warren says:

    My partner who has Aspergers and dyslexia was put through the family court accused of hurting her child’s arm. She was completely railroaded and lost. Her child is on an SGO with her brother. We are going back to court and need someone who understands female Aspergers who are mothers.
    If you can help or know someone who can please contact me

  16. Trevor says:

    Hello,

    I can’t see that you’ve added much to this site for a while and wondered if it is still active, and just what the (ongoing) aims are… can you elucidate? I’m very interested to understand more about Asperger’s and how to handle it as an adult – in particular how to manage the effects it has on other people, or rather minimise its impact.

    I hope to hear back from you

    Thanks, Trevor

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