The Aspie Guide to Surviving a Family Christmas

Christmas is an intense time, even for neurotypical people, and it can be so much harder for autistic people, especially if you are undiagnosed or your family do not accept your diagnosis. There is more social pressure at Christmas than at any other time of year, to “do the right thing”, and you might feel your own needs are being lost in the tidal wave of traditional expectations.

Don’t be afraid to look after yourself. It is not selfish to protect yourself (and others) from the consequences of you becoming overloaded!

1. Schedule some down time: if you’re spending Christmas in company with more people than you are used to, make sure you schedule some time alone, at least once a day – more often if necessary. Tell others in advance that you’re planning to do this, but don’t feel you must apologise for it. Explain that for you to stay relaxed and happy (rather than getting stressed and grumpy) while in company with others, you need to pace yourself, and know you can get away (and recharge your batteries) when things get too much. If they don’t like it, that’s their concern, not yours. Your concern is looking after you.

2. Cut down the input: if you’re expecting to be around small children, consider investing in some earplugs. Seriously! The type used by musicians allow you to hear what’s being said, at the same time as cutting out the worst of excess noise. If you can’t get hold of any of these, regular earplugs are available from all good pharmacies.

3. Watch what you drink: remember how tired you will be by the end of it all, and think about whether you really want to add a hangover to that.

4. Be prepared for change: actively think about how your routine will be affected by the festive season, and try to anticipate any potential feelings of discomfort/distress. Knowing in advance why you’re feeling so unsettled (even if it’s always obvious in hindsight), goes a long way to helping you cope with it at the time.

5. Try to relax: if you’re playing host this year, you’ll probably have everything planned down to the last detail! But try not to let yourself get frustrated and/or anxious if things go wrong, or timings slip. Do not beat yourself up trying to provide the “perfect” day (there is no such thing). And even if you don’t feel the need to make a complete escape, make sure you schedule some relaxation time into your plans.

6. Get out for a walk! Try to get out of the house at some point during the day, however sluggish you feel or reluctant you are to go. Fresh air and exercise will work wonders! It’s also a great excuse to escape (even if you have company) from the pressures of being confined to the house with other people.

7. Get plenty of sleep: try to ensure you get enough sleep in the days leading up to Christmas, and afterwards. There’s always a strong temptation to wrap that last present, tidy that final corner, or prep one more bowl of veg before the big day. If there are still chores to be done, it might be better to get up early and do them in the morning (when you are fresh, and more efficient), than struggle on late at night and then be so overtired that you can’t sleep.

8. Don’t feel under pressure to be “normal”: there are so many expectations surrounding Christmas – about the food you should have, the kind of presents you should give, how you should decorate your house, who you should spend the time with. Yet there is no “should”. If, for example, you have no responsibilies, and just fancy spending Christmas alone with a box-set and a bottle of wine, you do just that. It’s possible that others secretly want to do the same!

9. Remember medication: this isn’t a trite or frivolous suggestion – it’s so very easy to forget regular medication (which could be anything from vitamins to antidepressants) when your routine is disrupted; but if Christmas is likely to be stressful, it’s all the more important to make sure you have all the help you can get!

10. Show this post to others: if you want support to convince others of your need for adopting these coping strategies, consider showing this post to your partner/parents-in-law/friends/etc., so they can see that this is a very real issue, and that their support will go a long way to helping you enjoy your Christmas too.

And remember, in just a few short days, it will all be over for another year!


A-Z of Autism

A is for Autism, Asperger’s, Aspies, Ability, Attwood, Acceptance.
B is for Bullying.
C is for Clumsiness, Communication, Colour, Crowds, Confusion, Claustrophobia.
D is for Detail, Diagnosis, Doctors, Depression, Disability, Distress.
E is for Education, Employment.
F is for Focus, Fascination, Friends.
G is for Genetics.
H is for Humiliation, Honesty, Headphones, Humour.
I is for Ignorance, Intelligence, Interest, Input, Isolation.
J is for Judgement.
K is for Karma.
L is for Light, Loss.
M is for Meltdowns, Misunderstanding.
N is for Noise, Nightmares, Neurotypical, Normal.
O is for Oops, Organisation, Obsession.
P is for People, Pretending, Planning, Processing.
Q is for Qualifications.
R is for Rejection, Routine.
S is for Spectrum, Synesthesia, Stimming, Stress, Solitude, Silence.
T is for Teasing, Texture, Taste, Touch.
U is for Understanding
V is for Validation.
W is for Weird, Wiring.
X is for xx
Y is for Yabbering.
Z is for Zero

I’ve tried to avoid using words that mean the same thing, or represent the same concepts, and have stuck to those that mean the most to me. I’d be interested to know what words best represent your own experiences of autism, either directly or indirectly.

Living the Nightmare

I am almost always trying to achieve something in dreams, and other people are ‘getting in my way’, usually physically (physically blocking me), or bureaucratically (I’m sorry, madam, you can’t do that), or a combination of the two.

Dreamworld expectations are always realistic and reasonable – like I just need to get through a barrier to retrieve my rucksack (I never know how I come to be on the wrong side of the barrier), and my rucksack has all my stuff in it, including my car keys, and I have to get the kids from school, so I just need my bag… but the man won’t see that. The man will tell me I have to buy a ticket to get through the barrier, and the conversation will go like this:

Me: But I already have a ticket.
Him: I need to see it then.
Me: It’s in my rucksack, just over there.
Him: I don’t know that.
Me: Well if you’ll just let me get my bag, I’ll show you.
Him: You can’t come through without a ticket.
Me: But I have a ticket – how d’you think my bag got there in the first place?
Him: Your friend might have put it there.
Me: But I’m here on my own.
Him: I don’t know that. You’ll have to buy a ticket to come through the barrier.
Me: But my money’s in my rucksack too. I just need my rucksack.
Him: If you can’t buy a ticket, you can’t come through the barrier.
…and so on.

And then I’m trying to find someone to lend me the money to buy another ticket, and everyone’s looking at me like I’m deranged. And no one will help, because they think I’m a freak, but I’m just trying to get my rucksack, so I can get my car keys and pick up my kids, and I can’t even phone the school to let them know I’ll be late, because my mobile’s in my bag too, then suddenly I have a phone in my hand, but I don’t know the number, then I see it’s a smartphone, so I try looking it up on the internet, but there’s no data signal, and AAAAAARRRGGGHHH

That’s when I lose it. Big time. My worst nightmare: a meltdown in public. I scream and shout and cry and collapse on the floor, banging my fists and pulling my hair. Everyone looks at me saying, “there, we knew you were a freak…”

I get this dream, in various guises, maybe twice a week, and I always wake up with a sense of failure and loss and isolation that stays with me all day. Other people with Asperger’s syndrome might relate, and understand why this scenario haunts my dreams: in reality, it’s never that far away, and particularly when dealing with real-life jobsworths (such as our friend above), the nightmare sits on my shoulder daring me to lose control. The last time I got close to this, there really was a barrier – 2m high, and the guy wouldn’t let me though – so I climbed over it, literally*. And boy was he pissed. And boy was I smug.

One day I hope my dreams will catch up with my growing real-world confidence, and I can wake up feeling like a sucesssful freak instead.


*Being on my way home from the climbing wall, where far more technical climbs of 8m are the norm, his little 2m job was a synch. If only it always worked like that!