Hello, my name’s Leigh, and I’m an…

 
I’m an aspie. There, I said it.

It was on the 16th November 2010, at 1.05pm, when I was diagnosed with Asperger’s syndrome.
I cried.
It was a life-changing moment, but also a (albeit, harrowing) confirmation of a long-held suspicion, and not a surprise.

It has been a surprise for many others, though – those who don’t know me. “Well, it is a spectrum,” they say. “You obviously don’t have it very badly.”

They wouldn’t last five minutes inside my head.

From the age of three I’ve known I was different, and that I didn’t want to be. As I grew up, I studied body language, facial expression, tone of voice, and everything else that goes along with ‘being normal’. I convinced myself that if I just worked at it hard enough, I could be like everyone else. I got quite good, didn’t I?

The trouble is, the more skilled I became at pretending (which is all it could ever be), the more people expected me to behave ‘normally’. As I mastered increasingly subtle ways of interacting (you lot have no idea how complex a conversation is, and on how many levels), it became harder and harder for me to keep up. I became exhausted. Long term, chronically tired. Which is why I finally had to know.

Knowing is good, of course – it has to be – but, remembering that I’ve dedicated my whole life to being accepted into your world, having the door slammed and locked in my face is… well, it’s been a bit upsetting.

It took me two weeks to stop crying. I went through denial, bargaining, anger… I raged at everyone: the people at my school/university, for making my life hell – peers and staff alike (note to VJ: You bullied the autistic kid. How big d’you feel now?); my parents, for their attempts to correct me with ‘discipline’; and everyone else around me for having what I wanted. I’m through that now. You’re fine. (Please scratch anything I said/wrote to the contrary in recent weeks. Thanks.)

I’m calmer now, and can forgive myself for so many things: I’m not a failure; I’m not a crybaby; I’m not a fusspot; I’m not rude or uncaring, a stubborn little madam, or any one of a myriad of confidence-destroying labels. I’m an aspie.

Learning all about what makes an aspie is like a homecoming, and reading Tony Attwood’s Complete Guide to Asperger’s Syndrome, is like reading a Haynes manual for Being Me. I wish I’d read it thirty years ago. I wish my parents and teachers had read it… Anyway, I’ve decided. I’d rather be a happy aspie, than an miserable impostor.

So when I talk to much, don’t get your jokes, object to being teased, want the music turned down, wander off by myself, or whatever… please understand I’m not being awkward, I’m being me. I hope you’re okay with that.

I am.

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One Response to Hello, my name’s Leigh, and I’m an…

  1. Dominik says:

    I like the way you think and write – it is very similar to how I think!

    You write:
    “It has been a surprise for many others, though – those who don’t know me. “Well, it is a spectrum,” they say. “You obviously don’t have it very badly.”
    They wouldn’t last five minutes inside my head.”

    I keep the last sentence for my records whenever I am in the situation of belittlement. My experience here is very similar:

    “What – you are autistic?! No, that’s not possible!”

    or

    “Oh, I am sorry for that but it can’t be too serious…”

    …and so on.

    I was diagnosed with Asperger’s Syndrom at the end of September 2011. It is a big relief for me – to know that I am different and not just a strange person.

    Like you, I learnt to pretend to be normal, very normal: I have a family, children and a job and I learnt to drive a car at the age of 37! Puh, but driving a car is still a challenge but it works. But pretending to be normal has a big disadvantage: The others expect from me to be *always* normal.

    Knowing about Aspeger’s Syndrom, having read Tony Attwood’s book and reading and posting in forums online gets me the same feeling like you write above: It is like coming home!

    It is nice to be at home, isn’t it?

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